RareShare is a social network dedicated to build online awareness about rare medical disorders. It brings together patients, families and healthcare professionals to share information and personal knowledge about rare diseases.
The site is presently organized into micro-communities dedicated to a specific rare disorder. RareShare members can join these micro-communities to begin collaborating with others. These communities are designed for people to share experiences, explore treatment options and find support among others affected by the same disorders.
Their goal is to build a network of micro-communities where people can help each other by sharing firsthand knowledge about living and being affected by these medical disorders.
RareShare provides the Community Partnership Program. It offers health advocacy and patient support organizations a way to build awareness through RareShare. This is completely free to organizations selected to participate in the Program.
RareShare Discussion Forum
One of the main features of every RareShare community is its discussion forum. They set these up as a way for members to post questions and answers about their disorder and to share useful information with other community members.
Benefits of RareShare Membership
RareShare is free and easy to join. Here you can communicate with others that are affected by the same disorder. Contribute new information and personal experiences to your disorder community and find additional resources specific to your disorder.
Recent Comments