
PatientsLikeMe - Patients Helping Patients Live Better Every Day
PatientsLikeMe is a social networking health site that enables its members to share treatment and symptom information in order to track and to learn from real-world outcomes. PatientsLikeMe currently has communities for ALS, MS, Parkinson’s Disease, HIV, and mood disorders, as well as the rare conditions Progressive supranuclear palsy, Multiple system atrophy, and Devic’s disease (neuromyelitis optica).
The site was initially launched in 2005 when brothers James Heywood and Benjamin Heywood whose brother Stephen Heywood was diagnosed with ALS in 1998, recognized the need for community-based information sharing around specific diseases.
In PatientsLikeMe people can connect with other patients based around specific symptoms they are experiencing or treatments they are trying, and they can read the latest research on the site. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real world. PatientsLikeMe endeavors to create the largest repository of real-world disease information to help accelerate the discovery of new, more effective treatments. Each patient gets several charts where to map if symptoms have gotten better or worse, how their height and weight has varied, and what mix of drugs and dosages have been taking at each step of the way.
PatientsLikeMe plans to expand its communities into other health areas in the future. PatientsLikeMe is committed to providing a better, more effective way to captur valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease.
visit website - http://www.patientslikeme.com/
visit blog - http://blog.patientslikeme.com/
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